Down Syndrome Information

Pursuant to ACT 352 of the 2014 Louisiana Legislature, LDH is providing information concerning Down syndrome.

Below is a list of local, state and national websites that meet the requirements outlined in the Act.  These websites have extensive resources that physicians, nurses, therapists, or any other healthcare/intervention provider might find helpful in their practices.  In addition, there is comprehensive and reliable information on medical care, early intervention, support care and guidelines for treating people with Down syndrome.  Each site has a parent resource page with information and resources that are useful to families.    

The National Down syndrome Congress provides the brochure located at the link below which entails the public information required pursuant to the ACT:

http://ndsccenter.org/worpsite/wp-content/uploads/2012/09/DS-Brochure-ENG-5-2.pdf

Additional Resources Include:

National Resources

State Resources

EarlySteps - Louisiana's Early Intervention System - EarlySteps provides services to families with infants and toddlers aged birth to three years who have a medical condition likely to result in a developmental delay, or who have developmental delays. Children with delays in cognitive, motor, vision, hearing, communication, social-emotional or adaptive development may be eligible for services.  Children with Down syndrome qualify for EarlySteps.  

http://www.earlysteps.dhh.louisiana.gov/

Children Special Health Services (CSHS) - The CSHS program is the principle public agency ensuring that children and youth who have special health care needs in Louisiana have access to health care services designed to minimize their disabilities and maximize their probabilities of enjoying independent and self-sufficient lives.  Locations, contact information and other helpful resources for CSHS can be found at: http://new.dhh.louisiana.gov/index.cfm/page/1550

Blessed by Downs Support Group of Northeast Louisiana
Phone:  318-722-0011
Email: sheri@blessedbydowns.com
Website:  http://www.blessedbydowns.com

Cenla Down Syndrome Association
Email:  info@cenladsa.org
Website:  http://www.cenladsa.org

Down Syndrome Association of Acadiana
Phone:  337-234-3109 Email: dsaa@dsaa.info
Website:  http://www.dsaa.info

Down Syndrome Association of Greater New Orleans
Phone:  504-259-6201 Email:  kpehrle@cox.net
Website: http://www.dsagno.org

Down Syndrome Awareness Group of Baton Rouge
Phone:  225-588-2353 Email:  dsagbr@gmail.com
Website:  http://www.dsabr.org

Up with Downs
Phone:  318-797-8575
Email:  upwithdowns@hotmail.com
Website:  http://www.upwithdowns.com

Up4Downs of Southwest Louisiana
Phone:  337-582-6138, 337-309-7530
Email:  dseaux@up4downswla.org
Website: http://www.up4downswla.org